ReachOutGiving

Hi to all my friends!

I have a great praise report!!!  Mommy and Daddy decided to change my seizure medication and guess what??  My Central Apnea issues are going away! It has been over 1 month since my last apneic episode.  Mom and dad are very excited for this!

Here is my quick update for you:

We made a round trip visit to a special doctor at UCSF, he helped me get started on a new medication.  It is having some negative side effects though ... mommy says we need to give it more time, because right now I am on 3 different medications.

The doctor was really great!  He is working with mom and dad by email so we can get my meds right!

I have been in my own bed for about 2 weeks now!  I LOVE my own bed!!  It is really comfortable and it's my very own!  I had a few really good nights, where I slept til 5AM.  Daddy was really excited ... alas, it didn't last long!  I went back to getting up for hours at a time every night!  Mommy will update you more on that in her Journal.  Don't forget to check it out!

I have been doing well on my moving!  My scoliosis is becoming very flexible and I'm able to do more to the right!  I also have been using my mouth more and more!  I love apples and carrots!  Mommy wants to get me some mango to try!  I am really enjoying being able to control my food!  Mom puts it in my hand and I can bring it to my mouth when I want too!  My speech ladies are really excited too!

I am really excited for the up coming week ... we get to go on a vacation!  I can't wait!! :-)

Thank you all for your continued support and prayers ... keep mommy and daddy in your prayers too!  I know they are very tired and struggling with some decisions!

I LOVE YOU ALL!!!!