ReachOutGiving

Hi family and friends!!

It sure has been an exciting couple of weeks!!  I have been home with mom and dad for about 6 weeks since being diagnosed with Central Apnea.  It has been a roller coaster for mommy and daddy!!!

I did really good for a while, Grammy came over to learn the ins and outs of how to care for me ... but my brain decided to do really well while Grammy was here! :-)  I didn't have an episode for 6 days!  Mommy and daddy were pretty excited and felt like I might be improving ... I wasn't though, I was just taking a break!  It is very exhausting to have these episodes!

However, when mommy and daddy increased my seizure medication, after discussing with my neurologist the potential of this medication possibly participating in my apneic episodes ... they felt they hit the nail on the head!  

It takes 4-7 days for the medication to get into my system!  After they increased my medication 4 days later, I had 6 episodes in 24 hours, and one of those episodes lasted almost 4 minutes!!!  That's when my daddy said we were done!  Yes, I did not breath for almost 4 minutes ... mommy and daddy handle this very well, but I know that they are scared too!

So I'm excited to say, my neurologist got right on a new medication and it arrives tomorrow ... with my Grammy and Grampy who are coming to visit!  I am very excited!

This medication will take 8 weeks to build up in my system, but I will be sure to let you all know how I am doing in a few weeks!!

Be sure to check out mommies blog ... she will update you on my daddy!!

Thank you all for your support and love!